Where Breakthroughs Set Sail
Conference Agenda
Registration and Check-In
Welcome Reception
General Breakfast
Welcome and Patient Story
Hereditary Hemorrhagic Telangiectasia: A Genetic Odyssey
Emerging Novel Therapies for the Treatment of Hereditary Hemorrhagic Telangiectasia
Break
Transforming HHT Research
The Genetic Basis of HHT and its Implications
Lunch
Advocacy & Research Infrastructure
Presenting Sponsor Podium Presentation
Poster Pitches
Poster Session
4:15–5:00 PM: judging for even-numbered posters
5:00–5:45 PM: judging for odd-numbered posters
General Breakfast
Welcome and Patient Story
Clinical Trial Plenary
Participating programs: Alnylam, Atavistik Bio, Diagonal, Tectonic, Terremoto, Vaderis, Pazopanib, Bevacizumab (TrUST HHT)
Break
Preclinical Drug Development Abstracts
Complicated Case Presentations and Scientific Conundrums
Lunch
Regulatory Science and Pathways to Drug Approval: Regulatory Landscape and FDA Pathways for HHT Therapeutics
Disease Mechanisms and Vascular Biology
The Role of PIEZO1 in Hereditary Hemorrhagic Telangiectasia
General Breakfast
Welcome + Oh, the Places You Go: A Personal Journey with the HHT Community
Clinical Manifestations, Bleeding and Anemia in HHT
The Impact of Maternal and Fetal Iron Status on Brain Development
Break
Registries, Cohorts, and Population Genetics
BVMC and MARS Updates
Lunch
Cure HHT Updates: CHORUS and Research Roadmap Update
HHT Research Roadmap: Small Working Groups
Cocktail Reception
Dinner & Awards
After Party
General Breakfast
Welcome and Patient Story
Integrated Care, Imaging and Clinical Practice in HHT
AVIATOR
Break for Transition
Community Updates around the World in HHT
Building an International HHT Center in Singapore
Sclerotherapy Demonstration
Lunch
The Future of Investigator-Initiated Research: AI, Knowledge, and the Next Generation of Scientific Discovery
Studytrax
Closing & Awards
Optional Networking & Departures
Agenda current as of August 12, 2026.
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Conference Leadership
The 2026 HHT International Scientific Conference is guided by a leadership committee of respected experts who bring deep scientific, clinical, and strategic insight to every stage of planning. Their thoughtful direction helps ensure the program reflects the most pressing questions in HHT research and care, creates space for meaningful collaboration, and supports a program designed to move the field forward with purpose.
MD, FACR
MD, PhD
PhD
PhD
PhD
MPA
Thank You To Our 2026 Sponsors
Presenting
Platinum
Gold
Silver
Bronze