Medical Professional Agenda

Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. This session will discuss the screening guidelines, symptoms, and therapeutic approaches to AVMs in the lungs.

Claire Kaufman, MD

10:00 am-10:45 am

Evergreen Ballroom C

Raj Kasthuri, MD, MBBS

Managing Bleeding, Iron deficiency, and Anemia (CME Credit available)

In this session, we’ll discuss how to manage bleeds from the nose, skin, and GI tract. In addition we’ll review anemia and iron deficiency, an overview of the guidelines, types...

Raj Kasthuri, MD, MBBS

10:45 am-11:00 am

Evergreen Ballroom Foyer

Break

11:00 am-11:30 am

Evergreen Ballroom C

Joseph Shieh, MD, PhD

Unraveling Genetics (CME Credit available)

Learn about the inheritance pattern of HHT, the newly identified HHT genes, the role of genetics on family planning, new genetic testing programs and the impact of genetic testing on...

Joseph Shieh, MD, PhD

11:30 am-12:00 pm

Evergreen Ballroom C

Raj Kasthuri, MD, MBBS

Pediatrics (CME Credit available)

Children are typically asymptomatic, but this doesn’t mean they don’t have HHT. Learn about the different screenings for children, how to manage AVMs and other special considerations such as anesthesia,...

Raj Kasthuri, MD, MBBS

12:00 pm-12:30 pm

Evergreen Ballroom C

Jeb Justice, MD

Epistaxis Evaluation & Management (CME Credit available)

Learn the proper evaluation and management of epistaxis. Discover the more traditional interventions as well as the cutting-edge surgeries and drug treatment options now available to HHT patients.

Jeb Justice, MD

12:30 pm-1:30 pm

Evergreen Ballroom EF

Lunch

1:30 pm - 3:00 pm

Evergreen Ballroom C

Miles Conrad, MD, MPH

Case Presentations and Q&A (CME Credit available)

HHT is commonly misdiagnosed and underdiagnosed. These HHT case presentations will teach the uncommon signs and symptoms as well as the common misdiagnoses.

Miles Conrad, MD, MPH

3:00 pm-3:30 pm

Evergreen Ballroom Foyer

Break

3:30 pm-4:15 pm

Evergreen Ballroom AB

Raj Kasthuri, MD, MBBS

GI Bleeding, Iron Deficiency, and Anemia

Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. This session will discuss the most effective ways to...

Raj Kasthuri, MD, MBBS

4:15 pm-5:00 pm

Evergreen Ballroom AB

Kevin Whitehead, MD

Edda Spiekerkoetter, MD

The Heart of the Matter and Aging

We’ll focus on the impacts of aging on HHT –symptoms, common contraindications of other treatments on HHT patients, drugs, and therapies to avoid, and the facts about pulmonary hypertension and...

Kevin Whitehead, MD

Edda Spiekerkoetter, MD

5:00 pm-5:30 pm

Evergreen Ballroom AB

Raj Kasthuri, MD, MBBS

Kevin Whitehead, MD

Edda Spiekerkoetter, MD

Q&A Panel

GI Bleeding, Iron Deficiency & Anemia & The Heart of the Matter and Aging

Raj Kasthuri, MD, MBBS

Kevin Whitehead, MD

Edda Spiekerkoetter, MD

5:30 pm-9:30 pm

Evergreen Ballroom EFGHI

Welcome Reception/Dinner

Day 3

04 Jun 2023

7:30 am - 8:30 am

Evergreen Ballroom EF

Breakfast

8:30 am-8:45 am

Evergreen Ballroom AB

Patient Story

8:45 am-9:30 am

Evergreen Ballroom AB

Katie Wusik, MS, CGC

Living with HHT

Explore the effects of HHT on your mental health and family relationships and learn coping skills that can help you live better with HHT. Get tips on how to educate...

Katie Wusik, MS, CGC

8:45 am-9:45 am

Evergreen ABCD

Katie Wusik, MS, CGC

Living with HHT

Katie Wusik, MS, CGC

9:30 am-10:45 am

Evergreen Ballroom AB

Jeb Justice, MD

Holly Boyer, MD

Bryan McCrae, MD

Nosebleed Management Panel

-Medical Treatment -Surgical Treatment -Drug Therapy Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of...

Jeb Justice, MD

Holly Boyer, MD

Bryan McCrae, MD

10:45 am-11:00 am

Evergreen Ballroom Foyer

Break

11:00 am-11:45 am

Evergreen Ballroom AB

Jeb Justice, MD

Holly Boyer, MD

Raj Kasthuri, MD, MBBS

Bryan McCrae, MD

Concurrent Session 1: Q&A Breakout -Nosebleeds, Bleeding, Iron/Anemia

Q&A Breakout – Nosebleeds, Bleeding, Iron/Anemia

Jeb Justice, MD

Holly Boyer, MD

Raj Kasthuri, MD, MBBS

Bryan McCrae, MD

11:00 am-11:45 am

Evergreen E

Kevin Whitehead, MD

Katie Wusik, MS, CGC

Edda Spiekerkoetter, MD

Concurrent Session 2: Q&A Breakout – Living with HHT & Aging and HHT

Q&A Breakout – Living with HHT & Aging and HHT

Kevin Whitehead, MD

Katie Wusik, MS, CGC

Edda Spiekerkoetter, MD

11:45 am-12:15 pm

Evergreen Ballroom EF

Lunch

12:15 pm-1:45 pm

Evergreen ABCD

Cassi Friday, PhD

Murali Chakinala, MD

Chris Hughes, PhD

Advancing the Cure: An HHT Research Update

It is important to know the basic science behind HHT to understand our current and future research initiatives. Dr. Hughes will define scientific terms, explain the relationship between basic, clinical,...

Cassi Friday, PhD

Murali Chakinala, MD

Chris Hughes, PhD

1:45 pm-2:02 pm

Evergreen Ballroom AB

Research Presentations

Two researchers will present their research topics to the patients and providers.

2:05 pm-2:20 pm

Evergreen Ballroom AB

Closing Remarks and Awards

ACCREDITATION

In support of improving patient care, this activity has been planned and implemented by Cure HHT and Washington University School of Medicine in St. Louis. Washington University School of Medicine in St. Louis is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

CREDIT Available for this Activity:

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 Credits^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Nurses Credentialing Center (ANCC): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 ANCC contact hours.

Interprofessional Continuing Education (IPCE): This activity was planned by and for the healthcare team, and learners will receive a maximum of 4.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

Medical Professional Agenda

ACCREDITATION

CREDIT Available for this Activity:

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

American Nurses Credentialing Center (ANCC): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 ANCC contact hours.

Interprofessional Continuing Education (IPCE): This activity was planned by and for the healthcare team, and learners will receive a maximum of 4.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

American Medical Association (AMA): Washington University School of Medicine in St. Louis designates this live activity for a maximum of 4.75 AMA PRA Category 1 Credits^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.