15th HHT International

SCIENTIFIC CONFERENCE

Oct 15-19 2024
/
Mandelieu-la-Napoule, France
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2022 Angiogenesis Conference Summary
The 14th HHT International Scientific Conference brought together 300 in-person attendees and 50 virtual viewers to present and discuss the most recent and impactful scientific and clinical advances in HHT. 

The meeting had a record number of 209 original research abstracts submitted and the top scoring abstracts were selected for oral presentations. The Executive Summary and Abstract Summary published in Angiogenesis highlight the high-caliber HHT research presented in Portugal from trainees, scientists, and clinicians around the world. Visit the Cure HHT Resource Library to view the publications free of charge, for a limited time. 

Important Information!

 
Due to the Summer Olympics occurring in France, all hotel venues have strict policies surrounding booking and cancellations. Please book your hotel early and pay close attention to registration and booking timelines.

You can network with others attending the conference and share information in the Cure HHT Research Network Hub

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Agenda

This conference will be held June 3rd - 4th 2023.
Day 1
03 Jun 2023
Day 2
04 Jun 2023

Welcome

A warm welcome from Cure HHT. Learn about our organization, current research, and our HHT community.
Marianne Clancy, MPA

HHT Overview

Introduction to HHT-specific terminology, the basic clinical features of HHT including the Curacao diagnostic criteria, and the differences between a telangiectasia and an AVM. This session will explain the general...
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Mark Chesnutt, MD

HHT Screening and Guidelines

In this session, we will review standards of care, screening guidelines, and diagnostic tests and frequency of testing for HHT patients.
Steve Hetts, MD

Q&A Panel

HHT Overview & HHT Screening & Guidelines
Steve Hetts, MD
Mark Chesnutt, MD

Genetics: Unraveling your DNA

What is DNA? Learn about the inheritance pattern of HHT, the newly identified HHT genes, the role of genetics on family planning, new genetic testing programs and the impact of...
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Katie Wusik, MS, CGC

Tangled Web of AVMs

Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. This session will discuss the symptoms and therapeutic approaches to AVMs in the brain and lungs.
Steve Hetts, MD
Claire Kaufman, MD

Q&A Panel

Genetics & AVMs
Katie Wusik, MS, CGC
Steve Hetts, MD
Claire Kaufman, MD

Concurrent Session 1: Screening Guidelines & Tangled Web of AVMs; HHT COE Visit

1:30pm – 2:15pm (45 minutes) Q&A Breakout- Screening Guidelines & Tangled Web of AVMs 2:15pm – 3:00pm (45 Minutes) HHT Center of Excellence Visit
Brittany Steed, MA
Claire Kaufman, MD
Mark Chesnutt, MD

Concurrent Session 2: Family Planning, Pregnancy, Pediatrics

Raj Kasthuri, MD, MBBS
Els De Gussem, MD
Katie Wusik, MS, CGC

GI Bleeding, Iron Deficiency, and Anemia

Trying to figure out the cause of your anemia? Gastrointestinal(GI) bleeding tends to go untreated and is often misdiagnosed. Learn how to recognize the symptoms related to HHT in the...
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Raj Kasthuri, MD, MBBS

The Heart of the Matter and Aging

Discover how to care for your HHT in coordination with other medical conditions. This session will cover a variety of topics that are associated with aging including how liver AVMs...
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Kevin Whitehead, MD
Edda Spiekerkoetter, MD

Q&A Panel

GI Bleeding, Anemia, & Iron Deficiency & The Heart of the Matter and Aging
Raj Kasthuri, MD, MBBS
Kevin Whitehead, MD
Edda Spiekerkoetter, MD

Living with HHT

Explore the effects of HHT on your mental health and family relationships and learn coping skills that can help you live better with HHT. Get tips on how to educate...
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Nosebleed Management Panel

-Medical Treatment -Surgical Treatment -Drug Therapy Learn the medical terminology used by ENTs and the benefits of using the Epistaxis Severity Score (ESS) to evaluate nosebleeds and the effectiveness of...
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Jeb Justice, MD
Holly Boyer, MD
Bryan McCrae, MD

Concurrent Session 1: Q&A Breakout -Nosebleeds, Bleeding, Iron/Anemia

Q&A Breakout – Nosebleeds, Bleeding, Iron/Anemia
Jeb Justice, MD
Holly Boyer, MD
Raj Kasthuri, MD, MBBS
Bryan McCrae, MD

Concurrent Session 2: Q&A Breakout – Living with HHT & Aging and HHT

Q&A Breakout – Living with HHT & Aging and HHT
Kevin Whitehead, MD
Katie Wusik, MS, CGC
Edda Spiekerkoetter, MD

Advancing the Cure: An HHT Research Update

It is important to know the basic science behind HHT to understand our current and future research initiatives. Dr. Hughes will define scientific terms, explain the relationship between basic, clinical,...
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Cassi Friday, PhD
Murali Chakinala, MD
Chris Hughes, PhD

Research Presentations

Two researchers will present their research topics to the patients and providers.

Who we are

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What we do

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Why us?

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Hotel

PULLMAN CANNES MANDELIEU
(425) 462-1234scicon@curehht.org

605 Avenue du Général de Gaulle

BP 50049 6211 MANDELIEU LA NAPOULE FRANCE

Reserve Now!

Use Code PULLCAN2.